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Modern Migraine Mama

Creating Community Through My Migraine Journey

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the.mindful.migraineur79@gmail.com

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There is an old saying that if one door closes another one will open. I wholeheartedly believe that this is true, and in most instances its for the better. But when the door being closed is the door to the Headache Specialist that you have been seeing for several years, its been a VERY tough pill to swallow.

BOOM- there it is—another attack. This time I went almost 48 hours without searingly sharp stab behind my right eye. But in an instant it all came rushing back. Settling in behind my eye like a bear settling in for a long winters nap.

“Be the change you want to see in this world”—this timeless quote that has been historically linked to Ghandi is one of my favorites. I have always wanted to DO more in this world to make a difference, but was never quite sure how I could. Until now. Over two years ago, I started this IG account with nothing more than the hope of finding a community of others who also suffered from this illness. During these two years, I have discovered a passion for advocacy for chronic illness; in particular chronic migraine, and now recognize that I can use this account as a vehicle for change!

Learning to live within the confines of this battered and broken body has become one of the greatest challenges that I have come to face in my mid-adulthood. The past several weeks has been a real test of my mind, body and spirit.

There it is ——the face——not the face of compassion for this disease—but the face of sadness, anger and PITY. In my tenure as a human that lives with “chronic” migraine , I have seen THE face NUMEROUS times. The face is usually followed with a “WOW, How do you do it”, or “ I could never live life in THAT much pain”—but here’s the cold hard truth—I DO NOT have a CHOICE. I do not CHOSE to wake up every day NOT knowing how I may feel. I do not have a CHOICE to cancel plans numerous times because I cant get out of bed and appear “flakey” to the world. I DO NOT HAVE A CHOICE TO LIVE WITH THIS DISEASE. But I do EVERY SINGLE DAY. I put one foot in front of the other and live the BEST life that I can in a body that is battered, broken and weathered by the storm.

I am going to be 100% REAL with y’all—working, being a mom and managing a chronic Illness is HARD——REAL HARD. The first few weeks of my new job and our “new normal” has looked a lot like organized chaos than the simple, slow and intentional life that I aspire to live. The past few weeks, I have been jotting down ideas of how “re-entering” a normalized life could be made easier. So here are my thoughts in no particular order!

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